Responsible denial (aka: travel freak-out)

I always freak out about travel, whether it's twenty minutes away by car, or two hours away by plane. With the car situation, I'm always worried that I'm going to leave something at home that I'll need because of a symptom flare. Then, because I don't have it, I have to call the evening short, turn around and go home. If I can go home, depending on how bad the flare is... there's been more than once I've had to crash at a friend's house. I carry a dose of my morning meds with me at all times, for that reason. Plane travel. Wow. Not only do I not have the option of turning around, but the flight itself will likely cause a flare. And the humidity in Seattle will cause a flare, guaranteed (that's why I left!). Pain. Real, physical pain. And potentially an ER trip (if the last 4 times I've flown are to be trusted). This is my travel freak-out.

When I get in this state of panic, I will shut down completely, if I'm not careful. Not that I can't take care of myself, no... More that I'll lose hours just staring, my thoughts racing (or no thoughts at all), because the whole thing is just too scary. I'm going to talk to my doctor and see if I can't get some extra medication for that time. I can go back on the Relpax for the migraines. I have no idea how we're to address the neuropathy. Probably more Ultram so that I'm not bouncing around on higher, then lower, doses of narcotics. But I don't know it's going to be enough. I have to guess and hope I'm accurate. The worst the pain was in Seattle, it hurt to much to hold a pencil in my hands, let alone type. I nearly lost my mind, worrying I'd have pain like that forever. And now I'm volunteering to go back into that environment? I sure hope this works, that's all.

I'm trying to allow myself to feel the fear and do the right thing anyway, but feeling the fear at this point is not helping!! There's just one phrase, one sentence, that is in my way:

I WILL HURT.

That's enough to stop me cold. At that level of pain? Absolutely. That's terrifying.

This is why I am not anti-denial. Sometime, denial is a heck of a useful tool. If I can just block out the part past me getting on the plane here in Denver, then I can still get done what I need to get done, without worrying about what comes after. All I have to do is make sure I am prepared to get on that plan, and be away for a week. I can imagine I'm going up to the cabin, where I routinely feel better, from the higher elevation. I'd need to take the same preparatory steps. I'd just feel better about it, and in that way, I'll actually be able to accomplish it.

I'm aware that I'm fooling myself. That's the intent! I have to do this. The likely reality is scaring me stiff! I have to give myself some carrot. And I can't hang my hopes on this trip working out as my motivation. I need to be able to handle the disappointment if it doesn't work out, and compounding it with, "I did all that suffering! For nothing!" is never a happy time. Also, I don't know what kind of time I'll need to recover once I get home again, so rewarding myself with something at home could need to be put off. That will only make me doubly disappointed. Nope. It's just easier to trick myself into a good mood. I'll probably have a full panic attack once I get on the plane, but my counselor and I have prepared for that.

This is what I call, Responsible Denial-- when my denial enables me to be more productive, more responsible (obviously), and more compassionate to those around me. I go into denial that I'm in pain all the time. Sometimes, it actually works! Then I'm able to use less medication, get more done, and just live more of a normal life. Now, I have to be very careful. I don't want to ignore symptoms that are new, or unusually severe. (The latter is pretty easy, though... massive distress is usually urgent.) New symptoms need to be referred to a doctor. They're the ones who can tell me what it's about, how to manage it, and whether or not I need to worry. Responsible denial is a great tool, but I must never use it selfishly. It's about enhancing my ability to be responsible, not about avoiding consequences.

So... it's off to "the cabin," and now I actually feel like I want to make sure I have a good time. Doing the steps to make sure that happens is going to be easier now. I've even got a smile on my face.

And who knows? Maybe it could all work out... Perhaps my adaptation to high altitude will help me cope at sea level for a short while, because I'm getting so much more oxygen. It could happen! And I won't know until I get there... In the meantime, there's work to be done!

1 in 100

Doctors, we need to have a serious talk. This is a story from back before I was a patient, when I worked security at Barnes Hospital (BJC). They had just put in one of those new card-swipe key-systems, so all the doctors had to get new IDs. I was part of the security team that would ask the doctors to come in, pose for their picture, verify some basic information, and then give them their new ID badge. We would run folks through in batches of one hundred, because that's how many cards the machine could process at once. And I know this is purely anecdotal, but only one in one hundred doctors was actually nice to me.

Now, I hear the legions of the AMA screaming in protest, "But we have to be that arrogant to do our highly dangerous jobs. You have to have that arrogance, that confidence, to deal with things like cutting on the human body! It's only appropriate that doctors be arrogant!" But let me offer an example of men and women who have much more difficult jobs, and do it with a humility that is amazing.

You know that the deadliest job, even more deadly than military service, is that of the fishermen in the Bearing Straight. They have the show Deadliest Catch. But even more amazing than their job, is the job of the U.S. Coast Guard. These are the men and women who fly into the storm to rescue the fishermen in distress. These are the saviors of the people who do one of the most dangerous jobs in the world. Think you've got it bad at your job? Try doing it in gale force winds and sub-freezing temperatures.

Commercial fishing has long been considered one of the most dangerous jobs in America. In 2006, the Bureau of Labor Statistics ranked commercial fishing as the job occupation with the highest fatality rate with 141.7 per 100,000, almost 75% higher than the fatality rate of pilots, flight engineers, and loggers, the next most hazardous occupations.[8] However, Alaskan king crab fishing is considered even more dangerous than the average commercial fishing job, due to the conditions of the Bering Sea during the seasons they fish for crab. According to the pilot episode, the death rate during the main crab seasons averages out to nearly one fisherman per week, while the injury rate for crews on most crab boats in the fleet is nearly 100% due to the severe weather conditions (frigid gales, rogue waves, ice formations on and around the boat) and the danger of working with such heavy machinery on a constantly rolling boat deck. Alaskan king crab fishing reported over 300 fatalities per 100,000 as of 2005,[9] with over 80% of those deaths caused by drowning or hypothermia.[10] (Wikipedia - Deadliest Catch - Dangers of commercial fishing)

There is one group of medical professionals I will tip my hat to, and that is combat medical services. I had a favorite RN at the University of Washington ER. He was a Navy Combat Medic, and he could remain calm no matter how many top level traumas he was dealing with. I asked him once what his secret was. He replied, slightly stunned by my show of ignorance: "Nobody is shooting at me." That put things into perspective.

Only one in one hundred was nice to me. Ninety-nine though that their degree (and this was especially bad among new graduates) entitled them in some way to think themselves better than basic human kindness. There is something very wrong with that being the attitude of someone who is supposed to minister to the sick and weak. You're asking someone whom you've trained to be arrogant to then turn around and be sympathetic. The two are enemies! And we wonder why patients are complaining... It is really any surprise?

Medical Marijuana

Before we begin, I would like you to picture this. A plant is grown in a greenhouse. Its flower is harvested when it reaches maturity. It is then processed in a lab. It is given to the patient who is then able to lead a more normal life as a result. I'm not talking about medical marijuana, or MMJ. I'm talking about Digitalis, or as it's more commonly known---the foxglove---a flower that we grow and use and give to heart patients as a medication. We have also found use of this flower in science: "It is used as a molecular probe to detect DNA or RNA." (Wikipedia) We have been using plants and animals for our own needs since forever. Willow and birch bark are two of the original sources of aspirin. Novocaine, and all the other medications that end with -caine are a plant derivative. Alcohol happens naturally to fruit and grains in the right conditions. Even birds and monkeys get drunk. And yes, sometimes people use these things for recreation. So please, let's look at medical marijuana as exactly that: MEDICAL.

First, let's explore the science behind it. There is, in the body, a system, which they now call the endocannabinoid system, which works using biochemicals that are the same produced by the marijuana plant. Our bodies produce marijuana-type chemicals as part of their normal function. Marijuana is just an external source for these regularly used, natural human biochemicals.

The endocannabinoid system is a relatively recently discovered neuromodulatory lipid signaling system that is comprised of the cannabinoid receptors, CB1 and CB2, the endogenous arachidonic acid-based endocannabinoids, such as anandamide and 2-AG (2-arachachidonoylglycerol), as well as their biosynthetic and degrading enzymes. These components can be found in various locations throughout the body, such as in the central nervous system (CNS), the gastrointestinal tract, the liver, the pancreas, adipose tissues, immune cells, and skeletal muscles. Although performing a variety of different localized tasks, the system’s general role seems to revolve around maintaining homeostasis through regulating energy storage, nutrient transport, and feeding behavior. Furthermore, as their name implies, endocannabinoids are described as having cannabimimetic effects, in that they roughly mimic the pharmacological effects of cannabis. (P. Siebler, Masters student in Physiology at CU Boulder, "Sleep Physiology", 2011)

Let's put that in English... It's a recently discovered part of the nervous system that is comprised of the cannabinoid (meaning they respond to cannabis-based molecules) receptors, named CB1 and CB2, the the molecules (like vitamins A, E, D, and K) that the body makes itself, such as the molecule anandamide (pronounced AN-an-DE-mide) and 2-AG, as well as the enzymes that the body makes and uses to break these larger molecules apart. These compounds can be found all throughout the human body, such as the central nervous system (the nerves that control how we sense and feel), the gut, the liver, the pancreas, a "loose connective tissue" (the stuff that holds everything together) called adipose, immune cells, and skeletal muscles (how we move). Although the system performs a variety of different tasks at the small, local level, the system's general roll seems to revolve around helping the body maintain a normal state through regulating energy storage, the movement of nutrients through the body, and hunger. Also, as the name implies, endocannadinoids, these naturally occurring hormones that the body makes itself, cause roughly the same effects as experienced when a person takes medical marijuana.

While not a panacea, or all-cure, it's easy to see why medical marijuana is so helpful to so many people. It's one of those very basic biological molecules that the body needs, like a vitamin. This is why scientists now believe that there can be a endocannabanoid deficiency, called CERD, that can be treated with the use of medical marijuana. MMJ works on the central nervous system, so right there it will potentially help with any pain problem or central nervous system dysfunction, like epilepsy. In fact, medical marijuana has been found useful for children with epilepsy: THC effected reduced spasticity, improved dystonia, increased initiative (with low dose), increased interest in the surroundings, and anticonvulsive action. Or, in English, medical marijuana (in concentrated THC oil form) reduced muscle spasms, improved a medical condition known as dystonia (a neurological movement disorder, in which sustained muscle contractions cause twisting and repetitive movements or abnormal postures), increased spontaneous personal activity (with low dose), increased interest in the surroundings, and stopped convulsions (a medical condition where body muscles contract and relax rapidly and repeatedly, resulting in an uncontrolled shaking of the body).

In fact, in Israel, they are still recruiting for their clinical trial for the use of MMJ on PTSD. Their clinical trial is in Phase IV: If the drug successfully passes through Phases I, II, and III, it will usually be approved by the national regulatory authority for use in the general population. (Wikipedia) Israel has given governmental support to the use of THC for the treatment of PTSD, and other conditions.

Israel is one of the first countries to have permitted the use of medical marijuana. Tel Aviv’s cannabis clinics have been open for some time on an experimental basis, with government support.

They offer treatment for cancer, multiple sclerosis, HIV, colitis and other ailments. Recently too, Israel’s first-ever hospital to offer cannabis as a treatment, Sheba Medical Center in Tel Hashomer, started its pilot program. There patients obtain the necessary government permit, according to a strict protocol that the hospital developed, and then are provided with cannabis. (Medical cannabis in Israel: Revolution or evolution?)

But let's hear from an actual patient:

I lived in Colorado where it was legal and had a doctor that believed in its aid for fibromyalgia and migraines. I went through all of the legal channels of the state and used it for a while until we moved to Texas. I can say that it did really help me with the pain of migraines and the tension that comes along with them. MMJ is available in many strains which are directed for different illnesses, such as one that makes you hungry. My son uses this strain often for his Crohn's disease. He is able to keep some weight on this way. Another can give you energy to aid in helping us get off of that couch and clean the house.

As for the methods of using, there are many. I found that the Marinol (dronabinol) pills that are available by prescription did not work for me at all. The dispensaries can make up a capsule using the keef and it works good for someone who needs to relax and sleep. It takes awhile to work since you have to digest it. I used brownies at times, which is a very pleasant way to ingest the drug. I hate the smell and the taste it brings when you smoke it, but it is really the most efficient way for me to use it. I found that a water pipe (bong) was the least insulting for me. When my migraines are at their worst and I can't open my eyes or get out of bed, I could take 2 puffs and I could be up and around within the hour, or sleeping for a few hours if that was my choice.

I believe MMJ is a great choice for some people and should be made available to chronically ill patients, no matter state they live in. I am not oblivious to the problems that can come with marijuana, but I believe this is better for our bodies than some of the prescription medications that we are given. You cannot overdose on this plant. It has proven to be a Godsend for my son and brother-in-law who suffer with Crohn's disease. I wish it was legal in Texas; if so I would use it again. I struggled with using it at first because I am a Christian, but when illness takes over your life, some of our ideals can be questioned and maybe changed. Our eyes are opened to new ways of thinking and our ability for compassion and empathy grows.

Thanks for listening.

Finally, does it have side-effects? Sure. All drugs do. But are these side-effects actually dangerous? One study on driving statistics shows that stoned drivers are safer drivers:

Now, pro-legalization backers have yet another point in their favor: According to a new study from the University of Colorado-Denver, the 16 states that have legalized medical marijuana have seen an average 9 percent drop in traffic deaths since their medical marijuana laws took effect. The study analyzed data from 1990 through 2009.

“We went into our research expecting the opposite effect,” says study co-author Daniel Rees, a professor of economics at the University of Colorado-Denver. “We thought medical marijuana legalization would increase traffic fatalities. We were stunned by the results.”

When it comes to traffic safety, can marijuana really save lives?

By contrast, motorists who’ve puffed pot “drive slower, are less likely to take risks, and are more likely to recognize when they’re impaired and decide not to drive,” he says.

Additionally, both Spiritual Leaders and Law Enforcement are beginning to speak up in favor of legalization of marijuana.





If you have the courage to share, what are your thoughts?

How to fake having a real life

So there you are... a good health day has actually happened on the same day of a nice social event you want to go to. You dress up all spiffy, get your game face on, and head out to the party. You get there, everyone is talking and making chit-chat. Suddenly, someone turns to you and asks you, "So... what is it you do?" PANIC TIME! Do you let this stranger in on your world of health problems? They might look at you like you're contagious and walk away, or possibly worse, start giving your unwanted advice! Healthy people want to talk about your job (which you may not have), hobbies (which you may have had to abandon), and interests (which may be totally health-centered because you're hunting desperately for answers and solutions). What do you do?!? Well, one way to get through is to fake it. In this article, I will discuss three ways to talk about our health that make it seem like we have a real life.

1) Act like you're a volunteer.
In this instance, think of yourself as a volunteer forwarding the Grand March of Scientific Progress: "Well, I'm involved in health research looking at the long term effects of [name one of your medications] on patients with [name a related diagnosis for the medication]." Now doesn't that sound a lot sexier than, "I deal with nausea all day for which I take phenergan." They'll be fascinated, even if they have no clue about the diagnosis or medication you've rattled off. They'll want to know more: "Oh? What does that involve?" Don't lose your cool. "I meet regularly with doctors as part of a long-term follow-up studies." or "I take part in post-clinical trials. We discuss medication side-effects and other patient issues." Both answers say that you're a study participant. Technically, this is absolutely true. If you have problems with a medication, doctors will report their findings. It doesn't matter that you're a patient as part of that process. Let them guess that you're doing this out of the goodness of your heart. But they'll probably be a bit curious: "Do you actually take the medication?" Just smile with confidence and say, "Oh yes, but it's all under the close supervision of a doctor. And if it's for the advance of science, I don't mind the risk." Now you sound noble and brave.

2) Act like you're a professional.
For this one, you're not trying to impersonate an actual health professional. Rather, consider your experience as a health patient in a professional light. Talking to other patients online? That's networking. Blogging about your experiences? That's freelance online journalism. Let's take a look at that dreadful question again: "So what do you do?" That question can be followed-up with something like: "I work with outreach programs for patients suffering from [name your diagnosis] in online communities." Which translates from: I greet folks online when they join the health board I'm on and make them feel welcomed. If the party-goer wants more information, you can say something like, "Part of it includes patient education and patient empowerment... Helping people find online resources so they can then help themselves... That sort of thing." Which means: I share with people about our symptoms and point them to cool websites I've found. If they press you for details, you can say something like, "One common issue among [diagnosis] patients is [symptom]. We deal with this by taking a hands-on, team approach leading patients through self-care processes they can do at home. Sometimes we're able to recommend possible treatment courses they haven't tried that they can bring up with their doctor." Which means: I talk to other patients directly (online) and we talk about self-care we can do at home. We exchange ideas about stuff we have heard of and/or tried. Now all that talking on Facebook and in online communities sounds glamorous and self-sacraficing.

3) Act like you're an activist.
If you do anything involved with signing petitions to get the government's help with health care, you can say: I'm involved in political activism for health reform. When they ask questions, you can tell them about the challenges facing patients with your disease, and about the petition you signed. It always helps to do your homework on what you signed so you can easily talk about the details. Know what the goals of the petition are, who the sponsors are, and how many signatures are currently on it. "I checked quickly just before I came here, just to see how we're doing, and we're up to..." sounds very pro-active and high-minded. Look up other political activity around your disease, even if it's in other states. It sounds very cosmopolitan to be able to say, "Did you know in Florida they're addressing this by..." Or even more worldly still, "In Germany, they're looking into...". It's also great to be able to mention a celebrity who has your condition and the kind of things they're involved in for your disease. You can also look up news stories related to you disease, so you can say things like, "There was an article in the New York Times just the other day on..." Google is a wonderful tool. Now you sound informed and well-read.

So there you are! Three ways to fake having a real life, even if most of your time is taken up dealing with symptoms, doctor's visits, treatments and other god-awful necessities of a chronic illness. I bet you didn't realize your life was just that cool! Seen from the proper perspective and framed in the proper way, you too can make this look awesome!! Healthy people will never know the difference. (Unless they get wise to this article. So, shhhh! ;)

Enjoy the party!

Clinical endocannabinoid deficiency (CECD)

PubMed folks... it doesn't get much more reputable than that! National Institutes of Health... CONCLUSION: Migraine, fibromyalgia, IBS and related conditions display common clinical, biochemical and pathophysiological patterns that suggest an underlying clinical endocannabinoid deficiency that may be suitably treated with cannabinoid medicines. (That's medical marijuana for you folks at home.) http://www.ncbi.nlm.nih.gov/pubmed/18404144

Visualizing a Future You

One of the biggest problems I've had in dealing with my chronic illness and its limitations, is seeing myself as someone I can admire. There were certain preconceived notions I had of where I would be at 38, and my vision was no where near where I actually ended up. Some things I dreamed of---having children from my own body---are impossible for me. It's really easy to look at my life and see how much I've lost. But that kind of thinking gets me nowhere: it's focusing on the negative rather than the positive. If you don't like where you are now, picture a future you that you can live with, and aim for that. Then current circumstances are only temporary hurdles on the road to a greater destination. The easiest way to do that is to visualize who I am to be in the future.

When I do this visualization process, I first think of how I want to feel. This woman that I am to become... how does she feel inside? More confidant? Calmer? Happier? More content? More patient? A little more cynical? More outgoing, more reserved, or a little of both? I make sure that the qualities of this future me are qualities I can live with. If she's not happy, I throw that visualization away and find a new one. There's no use imagining a future me that's miserable. This is supposed to be an exercise about where I want to go with my life. Aiming for unhappiness is not that! And our visualization process is exactly that: Aiming ourselves towards a better, future us.

After I get the feelings down, then it's usually easy to picture what she looks like: longer hair (because I'm growing mine out), a few more lines and grey hairs (but I don't mind), quick to laugh, but mostly quieter than I am now; more watchful. I picture her in more business attire. Somehow she's figured out how to get some income going again and I've got new suits to show for it. I don't know how she's done it, but don't have to know all the details! That's part of the fun... Figuring out how to make this stuff true!

Once I can picture her, I can start listing off the reasons why she is the woman who she is. I know what she does for a living gives her a great sense of purpose. I can see that life has been difficult during the last 10 years, and I don't know what she's been through, but that the trials have made her stronger. I see her working in her new chosen field, and being recognized for her efforts. I see her smiling at the praise, but with humility because she knows the journey was that of a thousand steps. She's been able to make new connections in life and new friends with this line of work. I see her in a convention hall as part of the event organization staff, the applause leaking in from the dining hall, for whomever is speaker at the dinner that evening. When I picture it, the event is important enough to be a cloth-napkin affair, and that thought makes me smile.

I imagine her in her off-time, too. She's enjoying hobbies that I like, but didn't bother with before, because I was too busy doing more physical things that are now out of my reach. She's physically active (so that I aim away from being a couch potato), but in a more disciplined, mature way. Her exercise is Tai Chi in the quiet hours around sunrise, not dancing at the clubs to ear-splitting music until 2am. She's quieter than I ever dreamed of being, because it's never something I wanted, more it was thrust upon me by my disease. But I can picture it a sophisticated quiet, rather than quiet from boredom or humdrum. There is plenty of excitement to be had on the intellectual level that doesn't require zooming about physically as well. There are plenty of adventures of the mind that don't require extreme sports for their thrills.

When I do this visualization process, and I'm able to come up with a future me that excites me, then I really have something to live for: myself! Whenever I start to feel discouraged, I can sit and think about her, my future self, and think about what I need to do to get me there. I make sure to never visualize myself as healthier. That's dangerous---it's a set-up for disappointment should something bad happen. Instead, I make sure I visualize her as broken as I am now, if not moreso. But, to keep myself from despairing over that fact, I envision her as fully capable of handling whatever it is she has going on. That starts me thinking along the lines of problem-solving rather than just problem-despairing. I look at her life (which is not an impossible goal) and wonder, "Okay, now how did she get there?" When that happens, I start thinking about options and opportunities, rather then obstacles.

What's amazing to me is when I have a future I can look forward to living, I start automatically doing a lot of self-care activities. One big things I notice is that I'm a lot better about taking care of things that have no real pay-off now, but will have huge pay-off in the long run. My teeth are especially easier to take care of: I want my future me to have good teeth she can enjoy (I don't picture dentures for my future me), so I feel a real incentive to be responsible now. I also get a lot better with my money: I'm able to say to myself, "No, we can't make that impulse buy, even though we want to. We've got plans, and those come first." It's easier to make small sacrifices now, even though my self-pity/inner child wants the quick emotional fix of a right-now purchase (even for something as small as a box of Tic Tacs). When I know I'm working towards a goal, it becomes easier for me to defer gratification. Yes, I want the Tic Tacs now. But that satisfaction will fade quicker than the orange, sugary, candy after-taste. If we want real, lasting satisfaction, let's go for this bigger, long-term goal, instead... Self-talk like this helps me enhance my patience with my desires-of-the-moment, and choose actions that are more beneficial overall.

Try it for yourself, and see what happens! 1) Picture a future you that you like and admire, who successfully lives with your disease. What do they look like? How are they different from you now? 2) Imagine what it feels like to be that person. What does it feel like when they laugh? What do they feel like when they've see a long, lost friend? How do they feel physically when they run across something that melts their heart? 3) Visualize them moving through their life. What do you see them doing? What do they do in their off-time? Given your current limitations, what have they figured out to do to get past them or make peace with them? 4) Ask yourself, is this someone I want to become? If not, revisualize your future self until you can answer: Yes. 5) Figure out how to get from here to there.

Good luck, and happy daydreaming!!

Full Committee Hearing - Pain in America: Exploring Challenges to Relief

A wonderful thing has happened on Capital Hill. Congress is finally seriously looking into pain and pain research. This video is amazing. Some parts were difficult to watch for me because of my beliefs on pain, but I was amazed by Christin Veasley and her ability to defend pain patients. I am going to speak on the Emotional-Physical connection of pain, which I don't think was very well addressed in the video.

Can emotions cause pain?
Absolutely. That doesn't mean, however, that the pain isn't real. There are studies that show that heartbreak actually causes physical damage to the heart. So the idea of "all in your head" or "you're manifesting this pain" is just silly. Yes, emotions play into and can increase or decrease pain. Yes, you can play with your emotions and influence your level of pain. But I love how in the anecdotal stories, both people admit that their pain isn't 100% gone, but it's better enough that they can function. That's all any pain sufferer really wants---function. And when you find that solution, you'll treat it like a miracle, even if it isn't 100%. I'm the same way about my Occipital Nerve Stimulator. That doesn't, however, mean it works for everyone. Migraine patients, particularly, have the inability to ignore pain like other people. So while biofeedback works wonderfully on some, it just can't work on others. We need multiple ways of treating pain, and everything that comes along with it.

Does this mean doctors can ignore pain and send a patient to see a shrink instead?
Absolutely not. There needs to be a holistic (meaning whole system) approach to pain. One thing we know is that serotonin and dopamine---the neurotransmitters that we tinker with to help people with depression, anxiety and a host of other mood disorders---are the same chemicals used by the body for inflammation control and wound healing. Our bodies use up these chemicals when we are injured, sick, or in chronic pain. That means less of those neurotransmitters for the brain. So it's not surprise then that people who are chronically ill also often come up as patients with mental health needs. Not only is the injury/disease/pain itself difficult to deal with, but we're running at a neurotransmitter deficiency from the word go! Both the pain and the chemicals that support the body-while-in-pain need to be addressed.

But aren't their people out there who exaggerate and are really making things worse for themselves?
If there are, you should feel sorry for them. There are people out there with personality disorders where they will say whatever, including faking illness and pain, for all sorts of reasons. But the truth is, these people are so few and far between that for every one of them there are 40 people who are telling the truth. So really, if you want to err on the side of caution, err on the side that they're telling the truth. Even among children, (according to the book "Nurture Shock") tattlers only tell about one in six of the actual times adult rules were broken, and even then they wait until the most egregious act before they tell on others. Most people won't complain about pain until it starts to interfere with what they're doing. Would you complain about the rain if it ruined your plans? Probably. If it ended up being a tornado that ripped apart the fairgrounds? You'd definitely talk then. Pain is no different.

Well... I mean, are there people out there who can manifest physical pain because of an underlying emotional issue?
This one is a tricky one. As Ms. Veasley points out in the video, once, ulcers were thought to be manifestations of stress, and signs of a weak character. Now we know that it's a bacteria. There are people who spent thousands of dollars on psychiatric care who didn't necessarily need it. They were blamed for their own disease. There are plenty of doctors that think fibromyalgia is a hysterical disease, brought on by stress. However, they also thought Sjogren's Syndrome was rare until they made the second antibody test. Now they know it to be the second most common autoimmune disease. I wonder how many people diagnosed with fibromyalgia are possibly suffering from an unknown or undiagnosed autoimmune disease? It took years before I ended up with the right neurologist who said, "It's small fiber neuropathy causing your pain. You have an autoimmune disease. It's going to happen."

Now, on the same token, I do know that I can cause myself a stabbing pain underneath right my shoulder blade (and only my right shoulder blade) when I am really, really angry with someone and trying to ignore my anger. But in that case, I've usually been sitting in my fury for hours, so it's no surprise what triggered what first. Also, I get migraine headaches from stress, but strangely enough, it's the decrease in stress that triggers me. I learned this one after my father went in for emergency heart surgery. I was fine (which was amazing to me) the whole time that I was sitting there worrying and pacing. When I got the call that he was okay and let out that breath of relief and relaxation, it wasn't five seconds later I was on my knees in blinding pain.

But the point that Ms. Veasley makes that I think is all important, is that we just don't know that much about pain! We may think we can sit in judgement and tell other people that they just need to read this book and they'll be able to fix their problems! No!! The truth is, we are idiots about pain, our doctors don't get enough training in it, and we spend less money in research on it, even though chronic pain affects more people that cancer, heart disease and diabetes combined. We barely have any idea how the skin works, and we now believe the skin has a HUGE role in pain control.

Even if the emotions are manifesting pain, that doesn't mean we should dismiss the pain, or the person for "causing their own problem." On the contrary, if their nervous system is wired such that emotions do cause physical problems, that's a serious issue that needs addressing. We can do much to shore up the person emotionally, so that they don't fall prey to their condition so often, but life is difficult, and break-through moments are going to happen. My experience with migraines is like that. How exactly does one prepare for the stress of their father going into emergency heart surgery? The answer: you don't. Our only option is to fall apart an pick up the pieces on the other side.

All in all, I am very happy to see this video.

Liebster Blog Award!!

I have been awarded the Liebster Blog Award by Amy Junod at Falling with Grace. She deals with Sjogren's Syndrome, but more than that, her blog deals with the important part of remembering that it's not the mistakes we make, it's our recovery from them that counts. Go check her out!

This award is given to bloggers who inspire you and have less than 200 followers. The Liebster Award takes its name from the German word meaning ‘Beloved, Dearest or Favorite’. I’m humbled and honored to receive this award.

As part of the tradition it is passed along to 5 bloggers that have motivated and inspired.

To accept the award you must:

1. Link back to the person who gave it to you and thank them.

2. Post the award to your blog.

3. Give the award to 5 bloggers with less than 200 followers that you appreciate and value.

4. Leave a comment on the 5 blogs to let them know that they have been offered this award.

I am honoring the following bloggers for their wonderful contributions to the health community.

Deb, over at ABCs of RA blogs about the issues of chronic illness through her eyes as a patient with Rheumatoid Arthritis, a long-term disease that leads to inflammation of the joints and surrounding tissues. (It can also affect other organs.) She also tackles the personal and psychological issues that arise with any chronic illness.

Lori is a new blogger at Carpespero. She's dealing with Stage 3 Non-alcoholic fatty liver disease, and is in the process of trying to get on the liver transplant list. She has amazing strength and talks about some really tough subjects with amazing openness and honesty.

Wendy, at Depression Getaway deals with clinical depression and all the trappings that come with it. I love what she teaches in her blog, how we don't need to be victims of our disease. A very good read.

Jennifer is an incredible Health Activist and blogger at Understanding Invisible Illness. Her recent blog carnival was a huge success. Watch her blog to learn about other blogs, or just for her wonderful insights. She's a gem!

I'm actually not sure how many followers, Gary B. Rollman (Professor of Psychology, University of Western Ontario, London, ON N6A 5C2) has, but his blog is a must follow for any one dealing with pain. He blogs at Psychology of Pain.

There is no Over, only Through

For the folks who aren’t chronically ill, think of every time you’ve been injured or severely sick. Perhaps a broken bone or pneumonia landed you in the hospital once. There were doctors and medications and instructions. You did everything they asked, all the while upset that you had to deal with this (rightly so) and wondering, “When, oh, when does it get to be OVER?!” Imagine that time. Remember being stuck in it, and all the things you couldn’t do, all the help you had to ask for, how much of an inconvenience it all was, how people had to be patient with you…

Now imagine all that, but knowing that it’s never going to be “over.” It’s never going to get better. That your body will only get worse given time. Those crutches are staying. Those medications are part of your life now. The doctors and staff at the ER will know more about your life than your hairdresser. You’ll actually hear those terms enough times to know how to pronounce them. People will stop being patient and wonder why you haven’t learned to live with it yet, even though the symptoms feel as fresh as day one, every time. Vomiting always feels like vomiting. Kidney stones always feel like kidney stones. What we do get better at, in the long run, is getting angry at it.

Our disease (literally dis-ease) is something we hate about our life. It’s like being shackled to a monster. We have to drag this ugly, demanding thing around with us every where we go! It’s never not there. We can sometimes forget for a little while (#epicwinning), but it always comes back. We hate it about our lives, and we hate it about ourselves. Even though the disease may be the responsible party, we, the person, have to take responsibility for it. “I’m sorry, I tripped over my disease. I’m sorry, my disease is throwing a tantrum. I’m sorry, my disease is a jerk and won’t let me come out to play…” Pretty soon, I feel like the jerk having to explain all the time…

But it’s really, really dangerous to look at my disease this way. Pretty soon, I’m hating me. And that’s the least constructive place I can be.

My neighbor is involved in mix martial arts and she has inspired me. She's a cute little thing and you never would guess she could kick your butt. I was looking at some of her videos from a recent tournament. How those ladies compete is not a natural way to move. Watching the competition videos with her she would point out her mistakes, "now if I was paying attention there, she wouldn't have gotten me into that lock...". After the tournament, she had mean bruises and a few nasty bumps on her head. But these injuries didn't make her a victim. They made her a bad-ass.

Pain and suffering isn't always a negative thing. If it is pain and suffering we have chosen to accept (as, say, a means to an end) then we're a lot less likely to feel tragic about it. It's part of the process, right? Just the price of admission... We all understand that good things generally have a price tag stuck on 'em in some way. Whether it's enduring hundreds of class-hours for a degree, or working your way up the ranks in the military, or meticulously watching your weight to look good for your 20th high school reunion, we understand pain is a part of life. So isn't it reasonable, then, to say that the pain and suffering of my disease is no different? Pain is pain. It's the same nervous system. It's the same brain activity. So why would the bumps and bruises I get from one activity could be seen as triumphant, and the bumps and bruises of another activity seen as evidence of loss? They get you the same funny looks at first... "What the hell happened to you?!"

I have a scar through my eyebrow from a freak croquet accident (a long story for another day). The doctor who stitched me up told me to tell everyone I was on a secret German fencing team, and to graduate, everyone must leave with a scar. This one is mine. A scar on a woman's face on its own could be something to really be ashamed of, but add the cool story and it becomes mysterious and romantic...

Part of the problem is the frustration. I used to be able to walk just fine, thank you very much. I could leave my car at home, walk 5 miles, go shopping, and walk home again... just because it was a nice day. Now I have to hope that a nice day outside coincides with a nice day inside my body so that I can enjoy the day! And I have to drive. And sitting for most of the time is mandatory. Bah!! That certainly takes the fun out!

I can compare my life now to the life I knew before I got sick, and it will fall short in a lot of ways. My dreams at night tease me with visions of a body that follows my commands, instead of commands me about... I can dwell on all of that and be miserable.

Or, I can envision that I am on a quest to earn my black-belt in illness arts... That the bumps and bruises are testimony to learning process and something to be honored by rather than ashamed of. Yes, I am dealing with a storm of invisible problems that makes it difficult for other people to have sympathy for me. But I don't look sick? Thank you! I was hoping it wasn't immediately obvious. Just because other people have difficulty recognizing my problems and accomplishments, does that mean I should devalue my efforts too? Absolutely not.

I may not be able to get over this. But I can find a way through despite it. I don't have to find the light at the end of the tunnel. I can BE the light instead.