Saturday, August 22, 2015

Wit's End

This is me, a raw an exposed nerve, without a bone of guile in my body. I know I give everything away in my face, and in this much pain, I couldn't lie if I tried. That's a genuine pain problem for you: ruthless. And what's more: a drug addict can run circles around me all day. They can contain their emotions because they're not receiving cruel and unusual punishment from their own body. You think 30 million have a problem with diabetes and that's a big number? Try the number one debilitating ailment, the number one disabling problem in the U.S. Chronic pain. Madame, there is no second. It eats up the most public resources and ends well paying careers instantly. This is from the book, Next Medicine along with Social Security Administration statistics as previously cited in this blog.

I couldn't pack myself I was so sick. I can't unpack myself. This pain doctor, unlike any of the pain doctors I've seen in 13 years, wants an Illinois or Missouri ID. I just moved home. The State licensing bureau doesn't accept my current Colorado license as a valid ID. They had a two page list of all the paperwork I needed to being with me and the doctors only give a thirty day supply of pills to last you this whole process.

Guess who can't get any of this done, eh? The person with the painfully crippling disease, that's who.

We need the DEA to stop practicing medicine without a license. That's the only way you're going to be able to tell the junkies from people with legitimate pain problems. This is cruel and unusual punishment and I haven't broken any laws! I just want to be able to manage my pain and not a speck more!! I like being lucid thank you very much. I rely on my brain for my money, and I'm not about to compromise on that. But I'm broken. I have 13 years of paper trail to prove it. I have moved several times to find better health and was even able to return to work for a while.

But my health caught up with me. I have proven to the federal governments high standards, and they have me listed as RETIRED. And this at the tender age of 29.... I know people say that's the dream, but man, don't do it this way!

I am extremely lucky in other respects. There are people worse off than me, of that I have no doubt. I'm related to some of them. And I try to be there for them as best I can, when I can. Now is not one of those times. We need to stop the war on doctors and patients. It's inhumane and unconstitutional.

Friday, August 7, 2015

Make Money While Disabled

If you follow my blog at all then you know that I am all about advocacy, regardless of the topic. A while ago, I interviewed a certain someone who wished to remain Anonymous. I purposely waited to publish this interview to protect this person's Anonynimity. This is going to be the new purpose of this blog: To give you the information you need, especially if you were disabled in CHILDHOOD, but want to live, and be able to afford all the enormous out-of-pocket expenses the goverment DOES NOT cover, all while on a fixed income.

As per my Attorney's advice, I must give the foloing disclaimer: WHAT YOU READ HERE DOES NOT CONSTITUTE MEANS/MODE/OPPORTUNITY/MOTIVE/or INTENT TO DEFRAUD OR DEFUND THE GOVERNMENT IN ANY WAY. If you are really and truly disabled and you KNOW in PROVABLE AND PROFESIONALLY DOCUMENTED EVIDENCE that you will NEVER get better before your death, read on. If not, please stop reading NOW.

I cannot thank you enough for your willingness to participate. If you have any questions, please feel free to contact myself and I will be happy to answer any and all questions.

Let’s get to it, shall we?

Many of you may not know this but under our current POTUS, disability numbers have more than doubled, and if your are disabled between the ages of 18 and 49, you're *uqued (pardon my slang). Basically, governments work on lying to you so they can try and keep all the money AND the power. There's a little known rule that I did NOT include in my book for this very reason.

I keep this secret to keep you and me honest. I know there are people out there who will abuse the system. The system is also corrupt. We are, right now, esentially a Bannana Republic, and as such, the rich get richer and the poor get screwed.

With my exposure to the legal system, I know just enough to get me into and out of a lot of trouble. I wanted to become a lawyer myself, but got too sick before I had a chance to attend school and pass the bar. This isn't me whining. I'm probably much happier as a result. In fact, I'm sure of it. But I want to continue working when I can, volunteering as much as I can, and all the rest, so that I can improve my life and my level of fitness as I age and my rare disease gets worse. I want to help YOU do the same.

Now that that's out of the way, here is the first in a series of Q&A's

1. What is the nature of this business and how long have you been in this type of business?

I mostly sell gifts and design products. Almost everything I make and assemble myself, and all my crystal jewellery is sourced from high quality mines around the world. I started in April this year, officially, although the ball started rolling just before around the end of March!

2. Have you always had an interest in this area? Or was this something you created out of necessity?

A bit of both. I was in my last year finishing my degree and I didn't want to move back home, but of course, would have rent and bills to pay! At the same time, I was very unwell through a lot of my degree and feel lucky I made it through, so I had a lot to think about. In the end, as I always loved being creative, I decided I really wanted to create my OWN job selling the things that make me happy!

3. What type of illness do you have and how long have you had it?

When I was 12, I first developed depression and anxiety. My high school were very concerned throughout my entire attendance there, and I eventually got taken to a doctor when I was 15 and bumped as a priority to a mental health centre for children and adolescents. Although I received CBT and medication, I still had regular relapses. When I was 17, I had my first major suicide attempt not long after leaving child and adolescent services and was rushed to hospital for poison control. Since then, I've attempted suicide five more times and had several relapses. At 22 years on though, I'm still here! More recently I'm getting treatment for an eating disorder and have had to be really open about pain issues with my GP, but I'm making sure I stop covering it up and access the care I need.

4. How are you able to balance work and “sick days?

Fairly well actually! A slight cheat really, my partner is really supportive and helps me do the deliveries because my anxiety can make it stressful doing the daily post office run and sometimes just getting out of bed can be enough on my worst days! I do the bulk of the work but she helps picks up the odds and ends. Without her, it would be harder, but not impossible. Luckily most customers are very understanding and I actually have very quick postal times, so it wouldn't hurt if they got delayed by a day or do!

5. Everyone dreams of having a full-time, work-from-home job. What is something you would like to share with both "normal" people and people with disabilities... Some secret that you don't mind sharing that you think people REALLY need to know before attempting to make money while disabled?

Working from home definitely requires discipline and isn't an 'easy' route by all means, but when working in full time or even part time employment with set shift hours and expectations is unrealistic, it gives you the chance to keep busy and gain a sense of accomplishment and independence. Being disabled doesn't necessarily equate to a complete inability to work under any circumstances, often with a little extra support and adjustment of the traditional work structure are all that's needed. I firmly believe with the increase in technology, there is definitely an increase in opportunity for home work for anyone who needs that extra flexibility and freedom.

Thank you so much for taking the time to talk to me and my audience.

Absolutely, this was fun! Cheers!

Cheers, Anonymous! Come back any time ^_^