Saturday, June 30, 2012

#NMAM Blogger's pick... (confession!)

Choose your favortie blog post from any of this month's prompts from someone else's blog to share with us, and tell us why it's your favorite. Okay, here's where I have to make a confession. I don't read other people's blogs! Why? I don't know. I like the stuff founded in science. I read scientific blogs all the time. But I'm ashamed to say, I don't normally keep up with my fellow bloggers, unless you're on my Facebook feed...

When I blog here, I like my stuff to be well researched. Or, I like to debunk misinformation out there presented by professionals as "fact." That takes a lot of time. In fact, after starting my full time job, I've realized that all the research I was doing on sites like KevinMD.com, PainTopics.org, and WebMd is a full time job. I haven't been able to keep up with it while working and doing this blog-o-thon! I really do pour all of my time into what I'm doing here, and I have nothing left for anyone else. I don't know if that's a good thing or a bad thing.

So there's my confession... though I participate, I'm still a loner. That's why I'm so thankful for everyone who reads my blog. I know I don't do the same, except on rare jaunts of curiosity! So thank you... from the bottom of my guilty heart.

"National Migraine Awareness Month is initiated by the National Headache Foundation. The Blogger's Challenge is initiated by www.FightingHeadacheDisorders.com."

P.S. If your blog has a Facebook page, post it here and I'll be better about following it! lol

Friday, June 29, 2012

#NMAM More Often Than Not

Today is Chronic Migraine Awareness Day. People with Chronic Migraine have a Migraine or headache more often than not. Think of and share a random act of kindness that you can do for someone with Chronic Migraine. I have many ideas. But I want you to join me on a little thought exercise first. Here's what I want you to do. I want you to imagine your worst hangover. Now, instead of that getting better, I want you to imagine that lasting for days. Think of what you wouldn't be able to do. Then ask your migraineur friend if they need help with that.

If they're comfortable with it, see if there are some household chores you can do for them. Laundry. Grocery shopping. Running errands with them and be an extra pair of helping hands. Mow, or get someone to mow, their lawn for them. Help them with their pets. Make one of those coupon books: "One Free Grocery Shop - I will go grocery shopping for you (you pay for the groceries)." Stick in there any favor you think they would need help with, while in blinding pain. Ask them what they need help with. Make a list. Keep the things you will do. Pass on the others to a friends to help.

Find out what their migraine triggers are and what they like eating during a migraine. Make healthy homemade snacks that don't include any of their migraine triggers, that they can eat when they're too sick to cook. Find out what helps them in a migraine and make a gift basket of those items: reusable cold packs, rice sock, top-rated ear plugs, full-dark eye masks, and personally for me, Trader Joe's truffles and Red Bull (both help my migraines, ymmv).

Give them something that will help them laugh. Even if it's not during the migraine phase, laughter does help heal the body. Find out where they get their laughter from, whether it's stand-up comedians or comic strips. Give them the gift of laughter.

Those are my suggestions. Take what you like, and leave the rest.

"National Migraine Awareness Month is initiated by the National Headache Foundation. The Blogger's Challenge is initiated by www.FightingHeadacheDisorders.com."

Thursday, June 28, 2012

#NMAM "Lights, Camera, Action!"

Pick a movie character you can identify with, talk a bit about them and why you identify with them. I couldn't figure this one out last night, and then a migraine attacked. Oops.

Wednesday, June 27, 2012

#NMAM Learning to Self-Care

Talk about who inspires you to keep trying and not give up, despite your Migraines. There's a little girl who lives inside of me, my inner child, and I have to remember her in everything I do. She came to me once in a vision. I was in a level 10 migraine, and there were some pain pills on the counter. I was refusing to take them. I was in the shower, with the water on as hot as I could stand, to counteract the pain of the migraine. My vision went white, and they came to me: an impossibly beautiful version of myself, hand-in-hand with that little girl. And the woman said to me...

"Can you explain to this little girl the amount of pain you're in right now? Would you let her go through the amount of pain that you're experiencing, right now?"

Horrified, I answered, "Of course not!!"

The woman then put her hand on the girls shoulder, and I felt her hand on my shoulder. "So why are you doing it to yourself?"

I immediately got out of the shower, and dripping wet, took the pills.

There's a little girl that lives inside of me, and she's the culmination of me-of-days-gone-by. She wasn't treated properly when she was sick, and so I didn't learn properly how to treat myself when I was sick. I had to relearn all of that. So my best indication of whether or not I should allow myself to withstand something is if it makes sense to her. If she can understand it, and she understand good suffering---like suffering to get stronger, then it's okay. Once it no longer makes sense to her, I need to stop and think about what I'm doing. If I'm standing in a scalding shower, unable to do anything else, it's time to take the pain pills.

I do this for me, and everyone like me. Because I've had to figure this stuff out on my own, and these lessons came hard and at a high cost. People should know this stuff, so we can help heal one another.

So here's to you & me. Cheers!

"National Migraine Awareness Month is initiated by the National Headache Foundation. The Blogger's Challenge is initiated by www.FightingHeadacheDisorders.com."

Tuesday, June 26, 2012

#NMAM From the outside looking in

Today's challenge is: Write about what you think your family, friends, and others think a day in life, a day with Migraine disease is like.Mom: "I think it's lyme disease." Sis [screaming]: "I've got such a headache!! My Dad, Aunt Ge, Step-Mom, Step-Brother: *blink* *blink* "All y'all just don't know."Migraine disease doesn't just run in my family, it moves in and starts rearranging the furniture. I have one cousin who also started to get chronic migraines, but was able to control hers. I have another cousin who has chronic vertigo, controlled only through medication. Then there's me. I like to say that we all hurt and it all sucks and there's no competing... Everyone else says I win.

My migraines were controlled only through a bionic device, then through moving to a higher elevation with less severe barometric pressure swings, and medication, such as Botox, Neurontin, Advil, Toredol, and others. The biggest part of the migraine is no longer the pain, I'm glad to say. My doctors have that under control. It's the mood swings, for which there is no medication, that takes more finesse handling. And if my good rapport at my place of employment is any indication, I'd say I'm doing pretty well in that last department.

I am taking advantage of SSDI's "Trial Work Period," which allows up to 9 months of employment---at any income I can get---and I won't lose me SSDI benefits. I wasn't so brave as to try all 9 months at once. I went for a 2 month contract. I cannot tell you how much better I feel about myself, even though I'm not sure I want to continue past 2 months if offered (telecommuting would have to be on the table). I can't believe everything I forgot about myself, just from being away from the work environment. Here are some observations:

I love working. I always did. I still do. I love the type of work I do. I miss the rhythm and flow of it. I miss making great documentation. I miss wowing a customer. It's a complete delight to be back, and I don't even mind waking up early in the morning! What I do mind is all the pressure and anger that people get involved in, over things that aren't even in the same time zone as life and death... but they get all worked up as if that's the case. Angry, as if that's the case. It blows my mind how different my perspective is. Not just: "That's not worth getting worked up about." but also "Just because you're worked up doesn't mean I have to get worked up." and "You have no right to try to get me worked up about that." But most of all, "I don't have to get worked up to get good work done." So many people are married to their anxiety, as though being anxious about something is a magic shield that wards off bad outcomes. The more I worry, the more that will make things go right! Now, I'm not advocating just a live-in-the-moment attitude. The moment is fickle, and tomorrow takes planning for. But worry, past what is responsible, has no payoff. So don't do it.

I went through a war with my body, wherein I was taken prisoner, and tortured for ten years. You don't walk out of that experience the same person as you were, walking in. So I'm not even sure, sometimes, who I am. But I do know my limits. I can work a short while, then full-time (without telecommuting) is too much. I can finish what I started, but after that, a break. After this blogging event, I need a break, too! lol!

"National Migraine Awareness Month is initiated by the National Headache Foundation. The Blogger's Challenge is initiated by www.FightingHeadacheDisorders.com."

Monday, June 25, 2012

#NMAM Through My [Hypothetical] Children's Eye's

Write a letter to yourself from your children. I will leave this one up to the people who have children.

"National Migraine Awareness Month is initiated by the National Headache Foundation. The Blogger's Challenge is initiated by www.FightingHeadacheDisorders.com."

Sunday, June 24, 2012

#NMAM "Dear Genie"

Put together a wishlist for your life. There's one big thing that I've always wanted from my life, and that was a family of my own: a partner with whom I felt a true bond, children of ours to raise, and all the trappings that go with it, plus a small corner of the world to call our own. Right now, that's not possible. My female hormones from my pituitary will randomly quit on me. I've never been pregnant. They don't know if I can be. This breaks my heart. There is hope, after my cure, that it would be possible for me. However, that means starting a family in my 40s, which in itself is high-risk.

I wouldn't mind marrying in to children. I love all kids, whether they're mine or not. When I was a teen, my family called me the Pied Piper, because I used to take care of all my little cousins, from crib age to age 9 (I was 14). My mother, when she couldn't come up with a reason for why she did things, would say, "Well, that's how they taught us in Mommy School." Even as a child, I knew she was shining me on. There was no such thing as Mommy School. But then, as I grew older, I realized... No, there really is such a thing as Mommy School, and it's the wisdom of every mother, every grandmother, every great aunt, every woman who's ever had a child... They all have something to teach.

So I learned. We all would vacation together in a small area of Michigan. And when I say "we all," I'm talking 3 generations of 5 families, wherein each family averaged four kids. Around 100 relatives, some of whom are double-first cousins. I sat myself at their knee and I asked them how they did it. And they told me, and showed me, and I listened. I would take care of my younger cousins, and put my lessons into practice. I vowed that I would raise them to be cooperative and kind towards one another; something that my generation did not experience.

During vacations, I would gather up all my younger cousins and take care of them, collectively---as a group. One summer, I decided to teach them a choreographed dance. This is something that I knew would be difficult for them (ages 5-9). Everything about childhood is about instant gratification. I wanted to show them the secrets of delayed gratification. So I came up with a little dance, set a popular song at the time, and I asked them it they wanted to put on a show for the adults. They, of course, were skeptical.

I bribed them. I told them that we would practice for 15 minutes and then play for 15 minutes. Play and practice would get equal time (unlike in school). They thought I was being generous with all that play time, and it only seemed fair that work and play would equal... They figured they could put up with my teaching them something for 15 minutes. I was known for teaching them cool things, but their patience would naturally wear out. Fifteen minuets wasn't too long of a lesson time. They accepted.

At first, they were all about the play sessions. The dancing was work. It was hard. They would get things wrong and disappoint themselves. Play was all fun. There was no disappointment there. But then, as they started to get better and better at their parts, as they started to achieve, and get applauded by their fellow cousins for that achievement... well, then, the work started to be more fun, and they wouldn't want to stop to play!

But I made them stop anyway. I stuck to the script. some rules are there for a good reason, even if it doesn't make sense at the time. Even it it seems counter intuitive at the time. I told them Even when you're excited and want to press on with your work, take a break and go play to refresh your mind. Then when you return to your work, you'll find that things flow more naturally. They didn't believe me, and at first, it was hard for them to want to play again. But they got back into the grove, and before they knew it, it was dance time again. Sure enough, this time when they did things, it was easier, and they hadn't even been working at it! They looked at me like I'd just done a magic trick. I told them it was they who had done the magic trick---their mind did the work for them, because they had rested and stopped thinking about it.

When they put on the show, their parents couldn't believe it. They couldn't believe themselves and the reaction they got. twenty years later, that generation is still loving, inviting, encouraging, accepting, and fun. They've grown up to be amazing adults, and I'm so proud of every one of them. One of them even told me later of our time together, "You gave me the courage to be who I am."

There is nothing I have wanted more than to have my own family, children born of my own body, nurtured from my own breast; Raised in a family that is nurturing, protective, and spiritual; Part of a community that is connected, supportive, and accepting; A very extraordinary, normal life; Suburban or urban (I lean more towards the urban and the slower pace of life).

I want to be there to watch another set of beings grow into this world. I want to teach them how to manage the hurts and deal with the hardships, and find joy and happiness throughout. I want to show them how to be supportive and loving towards one another, so they can be there for each other once we're gone (my partner and I). I want to see them fly to higher heights than even I dreamed of, soaring to success on their own wings, launched from our shoulders. I want to see them find love, and make families of their own. I want to grow old and wise with my partner, and spoil my grandchildren in that delightfully wicked way that grandparents do.

I want to write a book... or maybe books. Paint paintings, sell my artwork... Make enough money in a career I love to be able to support that dream...



That's what I wish for.

"National Migraine Awareness Month is initiated by the National Headache Foundation. The Blogger's Challenge is initiated by www.FightingHeadacheDisorders.com."

Saturday, June 23, 2012

#NMAM I drank the Kool-Aid...

Today I'm supposed to write about "We all try things out of desperation, even when our common sense is telling us they're not going to do anything. Share your experience with this. I don't call that drinking the kool-aid. I call that the scientific process. I can't know in my mind it's not going to work. I have to actually try it. That's just making information complete. Nothing bad in that... So I'm a little confused. I guess I'll just have to wait for other people's answers to see!

"National Migraine Awareness Month is initiated by the National Headache Foundation. The Blogger's Challenge is initiated by www.FightingHeadacheDisorders.com."

Friday, June 22, 2012

#NMAM The Game Changer

See my bio.

I need a break.

"National Migraine Awareness Month is initiated by the National Headache Foundation. The Blogger's Challenge is initiated by www.FightingHeadacheDisorders.com."