My new doctor expected to show me how my claims for Autoimmune Hypophysitis were misguided. That hasn't happened. She told me that my AH was probably the fault of previous doctors giving me steroids when they didn't realize it, and that created the illusion of AH. She told me that my hypothyroidism was most likely primary autoimmune hypothyroidism, and that my swollen thyroid was evidence of that. One problem: the tests don't support any of her claims.
I do have hypothyroidism and I'm on the correct amount of medication for it. And the tests show that I'm not even borderline autoimmune thyroiditis. My results were less than *half* the minimum for a positive result. It's secondary hypothyroidism, not primary like she predicted. My thyroid problem is pituitary.
I have normal calcium, sodium, potassium, etc. My Vitamin D & B12 levels are fine. Nothing she claims to be really wrong with me has panned out. None of her predictions have come true. And now I don't want to continue with her suggested course of action. That's reasonable, right? But I don't know how to say "I don't wanna do that" without it being a challenge to her "authority."
She wants me to come off my prednisone. That seems like an extremely dangerous plan now. If my problems were not what I claimed, my adrenal glands should start to come back to life. But that's not terribly likely given the current evidence. What's more likely is that as I come off my prednisone, I'll start to get sicker and sicker, and eventually suffer an adrenal crash (which, alarmingly, can lead to coma and death). Um.... That's not something I'd like to risk just to prove a point that's already been proven by other doctors and labs.
The thing I worry about is if I say, "I'm not comfortable with this plan," she'll turn around and say, "I'm not comfortable treating you." It wouldn't be the first time.
I left a message for the doctor to call me.
[Edited to add (Mar, 3, 2012):]
The answer to my question is: you don't. They either mark you down as a non-compliant patient, which gives them grounds to stop treating you, or you vote with your feet and find a doctor that actually listens.